Health Information Exchange

Enabling secondary use of data.

Allow federated data compilation of data into a single set that can be used for real world research questions that are approved by an honest broker. 

Data is often contained in separate sources utilizing different schema and coding requiring significant workload to harmonize the data, creating a longitudinal record, across various systems. 

  • Single data source allows for more robust scientific exploration and ability to track long-term outcomes
  • Wider visibility of signals and trends 
  • Reduction in harmonization effort, time, and costs 
  • Honest brokers have established governance, processes, and technical infrastructure that enable access to RWD
  • Fair and equitable data representative of varying demographics

Health Information Exchange Workflow

  • HIE workflow for clinical research is unique because
    • Public funded by stakeholders in the region (hospitals, payers, state agencies) to support healthcare and research with existing governance and process for research
    • Longitudinal health record is a common feature of data in HIE that links patient data from multiple clinical systems with data harmonization
    • Strong adoption of HL7 standards already
    • Interested in generating values from data through creative partnership with sponsors

Resources & Implementation Guides

For more information on this use case, please contact Qi Li at [email protected]